tag:blogger.com,1999:blog-5580132116095520144.post3665016146530240455..comments2023-05-21T08:36:49.458-04:00Comments on The Voices in My Head: Not Just Another Alzheimer's Story: My Mom's JourneyLitihttp://www.blogger.com/profile/18005157434370433298noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-5580132116095520144.post-44546851047276622862012-05-30T20:27:58.405-04:002012-05-30T20:27:58.405-04:00Unless you have walked in the shoes of someone who...Unless you have walked in the shoes of someone who has a family member with Alzheimers, you really do not know understand. I am sure t is not that they don't want to visit and help but they truely do not know how or what to do or say. They do not mean to hurt you or the person with ALZ, but they just don't want to experience the hurt they will feel when the person no longer knows their name or recognizes their face. As I have heard you say many times...ALZ SUCKS!!!!!!!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5580132116095520144.post-84355427143774650662012-05-20T02:08:03.376-04:002012-05-20T02:08:03.376-04:00Cyndia, I know people mean well, and they really d...Cyndia, I know people mean well, and they really don't know what to do to help. I become a little out of sorts about it sometimes (I am also seeing some of the same issues with one of my best friends who is battling colon cancer), but then I blow my steam off and relaize that people have their own lives and they can't always know what families of the terminally ill go through.. I was once one of those people.<br /><br /> When a family is in the midst of the stress and emotions of caring for a very ill family member, "the simplest thing are often the hardest", as you pointed out. I hope I remember this lesson and don't become complacent to the needs of others ever again. Life sure does know how to teach lessons, doesn't it? Sometimes the hard way..Litihttps://www.blogger.com/profile/18005157434370433298noreply@blogger.comtag:blogger.com,1999:blog-5580132116095520144.post-64020249130220660502012-05-19T23:35:37.265-04:002012-05-19T23:35:37.265-04:00I'm a few days late in getting to this, but I&...I'm a few days late in getting to this, but I'm reading it in tears. As shitty as cancer is, Alzheimer's is so much worse. It takes and takes from everyone it touches, and it's never enough. <br />I think people are, irrationally, afraid of Alzheimer's. And they're thoughtless. When my husband was ill, people would say "call if you need anything", but I was too exhausted and heartsick to ask for what I needed most. " Could you make us a meal on the days we drive 200 miles for chemo so I don't have to come home and cook? "<br />"could you sit with me for an hour while I cry because I'm afraid the person I love above all else may die?" <br />"could you come wash my dishes or vacuum my floors? Go to the store? Take hubby out to the park and listen to him? Invite us over and promise me that for one evening we can escape this awful thing that has taken over our lives?"<br />The simplest things are often the hardest. <br />A good friend's father is also battling Alzheimer's. He has hospice care now and home health which makes it so much easier for his wife, and for my friend who lives 6 hours away. But it's agony still. <br />You are all in my thoughts. It is a terrible, horrible thing.Cyndiahttps://www.blogger.com/profile/06410119703382539295noreply@blogger.com